> We think it's critically important that HHS> considers patient access to their digitized > medical records via electronic health records > (EHRs) when considering how to define > "meaningful use."Huzzah!I expect that the systems implemented under ARRA's incentives will be with us for at least ten years. A lot changes in ten years - think back ten years to 1999, when blogging was in its infancy. Consider where we'll want to be medically ten years from now. Consider the likelihood that somebody you care about will have a medical crisis by then, and you will want to help in every way you can.I haven't studied this subject, much less thought everything through. But I have a few requirements I'd want any solution to fulfill for patient access.I want my health record to be a great tool I can share with my physicians. It should import and export data easily, gathering data from multiple providers. Note: I don't mean detailed diagnostic info, except as free text, but I certainly mean every bit of quantified or discrete information.And access to my images. In full diagnostic quality, so other docs can look at them. It should support shared access by physicians and patient and authorized caregivers, so each party can cross-check the other one's entries for simple typos and other errors.I want to be able to grant read-only or read-write access to others, with audit trails including Wikipedia-style rewinds.Considering what I pay for cable TV each month, and my internet connection, when the going gets rough medically I'd certainly pay a subscription for this. Or maybe my insurance company would. When I was 20 I wouldn't, so probably some freemium model would work.Anyway, it would be a horrid mistake not to require REAL industrial-strength patient access. Not every patient wants to jump in with both feet, but for those of us who do, for heaven's sake let us help.
I applaud this position by google on patient record access.I am president of ICMCC (a non-profit foundation) and we provide the only internet information platform on Record Access (http://recordaccess.icmcc.org).We have composed a recommendation on Patient Record Access, which recently, via one of the leading UK authorities, has reached Dr. Chan from the WHO. You can find it at http://recordaccess.icmcc.org/category/WHO.More of what we as an organisation think concerning EHR and RA, you can find in the speeches and blog entries on the main website, www.icmcc.org.Lodewijk BosPresident ICMCC
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